Health Charities

The Hibbs Lupus Trust

St James House, Eastern Road, Lancing BN15 8NA

Overview

The Hibbs Lupus Trust is a UK-based charity dedicated to supporting people living with lupus and raising awareness of this complex autoimmune condition. Located in Lancing, West Sussex, the organisation plays an important role in the lupus community by providing information, practical support, and guidance to patients and their families. Lupus is a chronic condition that can affect multiple body systems, and the trust works to help people manage their diagnosis and improve their quality of life.

The organisation offers various resources including educational materials, support networks, and access to specialist advice. The Hibbs Lupus Trust helps patients understand their condition, connect with others facing similar challenges, and navigate healthcare pathways. The charity also funds research initiatives aimed at improving treatments and understanding of lupus. Through its work, the trust continues to make a significant difference for the lupus community across the UK, providing both emotional and practical support to those affected by this serious health condition.

Frequently Asked Questions

The Hibbs Lupus Trust in Lancing provides support which may include information and advice about health conditions, emotional support and counselling, support groups and peer networks, practical help (benefits advice, transport, equipment), helplines and online resources, and community activities and events. Contact 01273 429933 to find out about specific services available in your area.
Most health charities including The Hibbs Lupus Trust do not require a referral. You can contact them directly by calling 01273 429933 or visiting their website. Some specialist services may require a referral from a healthcare professional. Many charities also welcome family members, carers, and anyone affected by the health condition they support.
Most services provided by The Hibbs Lupus Trust are free of charge. Health charities are funded through donations, grants, and fundraising. Some services such as specialist counselling may have a suggested donation. No one is turned away due to inability to pay. Contact 01273 429933 for details about any costs.
Yes, The Hibbs Lupus Trust welcomes volunteers and fundraisers. Volunteering opportunities may include helping at events, providing peer support, administrative help, fundraising, and awareness campaigns. Contact 01273 429933 or visit the website to find out about current volunteering opportunities and how to get involved.
Yes, The Hibbs Lupus Trust recognises the vital role of carers and may offer carer-specific support including information about the condition, emotional support and counselling, carer support groups, respite and practical help, and signposting to carer organisations such as Carers UK and Carers Trust.
The Hibbs Lupus Trust produces a range of information resources including fact sheets, booklets, guides, and online content about health conditions, treatments, and living well. These resources are written or reviewed by medical professionals and are designed to be accessible. Many are available free to download from the charity website or can be ordered by calling 01273 429933.
Many health charities including The Hibbs Lupus Trust provide welfare rights advice, helping you understand benefits you may be entitled to such as Personal Independence Payment (PIP), Attendance Allowance, Employment and Support Allowance (ESA), and grants for adaptations or equipment. Advisors can help with application forms and appeals. This service is free and confidential.
The Hibbs Lupus Trust may offer specialist counselling for people affected by specific health conditions. This can complement NHS services and may have shorter waiting times. Counselling may be available face-to-face, by phone, or online. Sessions are confidential. Contact 01273 429933 to check availability and how to access counselling.
The Hibbs Lupus Trust may operate a helpline providing information, advice, and emotional support. Helplines are staffed by trained advisors who understand the condition and its impact. Some helplines are available 24/7, while others have set hours. Contact 01273 429933 or check the charity website for helpline details.
The Hibbs Lupus Trust may campaign and lobby for better services, research funding, and policy changes related to the health conditions they support. You can support campaigns by signing petitions, contacting your MP, sharing on social media, and participating in awareness days and events.
Yes, The Hibbs Lupus Trust may run support groups where people affected by the same health condition can meet, share experiences, and support each other. Groups may meet in person in Lancing or online. Peer support can reduce isolation and help you feel understood by others going through similar experiences. Contact 01273 429933 for details of groups near you.
Many health charities including The Hibbs Lupus Trust fund vital medical research into causes, treatments, and potential cures for the conditions they support. Research funding comes from public donations and fundraising. You can contribute by donating, participating in fundraising events, or volunteering for research studies. Check the website for information about research The Hibbs Lupus Trust is currently funding.
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Contact Details
Phone
01273 429933
Address
St James House, Eastern Road
Lancing
BN15 8NA
Opening Hours
Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Saturday 09:00 - 17:00
Sunday 10:00 - 16:00
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