Health Charities

PSPA

Unit A4, Lakeside, Aylesbury, Aylesbury HP19 8DB

Overview

PSPA is a charity organisation based at Unit A4 Lakeside in Aylesbury that provides vital support and information to individuals affected by Progressive Supranuclear Palsy and Corticobasal Degeneration. These are rare neurological conditions that affect movement, balance, vision and cognitive function. The organisation works to improve the quality of life for patients and their families through research funding, clinical support, and raising awareness of these challenging diseases.

The charity offers a range of services including patient information resources, support groups, and access to specialist medical advice. PSPA helps connect people with healthcare professionals experienced in treating these conditions and provides emotional and practical support to carers and family members navigating the progressive nature of these illnesses. The organisation is committed to funding research initiatives aimed at understanding these conditions better and developing new treatments.

Located in the Lakeside business area, PSPA serves patients, carers and medical professionals across the UK, providing a crucial resource for one of the most vulnerable patient groups dealing with rare neurological disorders.

Frequently Asked Questions

PSPA in Aylesbury provides support which may include information and advice about health conditions, emotional support and counselling, support groups and peer networks, practical help (benefits advice, transport, equipment), helplines and online resources, and community activities and events. Contact 0300 010 0005 to find out about specific services available in your area.
Most health charities including PSPA do not require a referral. You can contact them directly by calling 0300 010 0005 or visiting their website. Some specialist services may require a referral from a healthcare professional. Many charities also welcome family members, carers, and anyone affected by the health condition they support.
Most services provided by PSPA are free of charge. Health charities are funded through donations, grants, and fundraising. Some services such as specialist counselling may have a suggested donation. No one is turned away due to inability to pay. Contact 0300 010 0005 for details about any costs.
Yes, PSPA welcomes volunteers and fundraisers. Volunteering opportunities may include helping at events, providing peer support, administrative help, fundraising, and awareness campaigns. Contact 0300 010 0005 or visit the website to find out about current volunteering opportunities and how to get involved.
PSPA may campaign and lobby for better services, research funding, and policy changes related to the health conditions they support. You can support campaigns by signing petitions, contacting your MP, sharing on social media, and participating in awareness days and events.
Yes, PSPA recognises the vital role of carers and may offer carer-specific support including information about the condition, emotional support and counselling, carer support groups, respite and practical help, and signposting to carer organisations such as Carers UK and Carers Trust.
PSPA produces a range of information resources including fact sheets, booklets, guides, and online content about health conditions, treatments, and living well. These resources are written or reviewed by medical professionals and are designed to be accessible. Many are available free to download from the charity website or can be ordered by calling 0300 010 0005.
PSPA may offer specialist counselling for people affected by specific health conditions. This can complement NHS services and may have shorter waiting times. Counselling may be available face-to-face, by phone, or online. Sessions are confidential. Contact 0300 010 0005 to check availability and how to access counselling.
Yes, PSPA may run support groups where people affected by the same health condition can meet, share experiences, and support each other. Groups may meet in person in Aylesbury or online. Peer support can reduce isolation and help you feel understood by others going through similar experiences. Contact 0300 010 0005 for details of groups near you.
PSPA may operate a helpline providing information, advice, and emotional support. Helplines are staffed by trained advisors who understand the condition and its impact. Some helplines are available 24/7, while others have set hours. Contact 0300 010 0005 or check the charity website for helpline details.
Many health charities including PSPA fund vital medical research into causes, treatments, and potential cures for the conditions they support. Research funding comes from public donations and fundraising. You can contribute by donating, participating in fundraising events, or volunteering for research studies. Check the website for information about research PSPA is currently funding.
Many health charities including PSPA provide welfare rights advice, helping you understand benefits you may be entitled to such as Personal Independence Payment (PIP), Attendance Allowance, Employment and Support Allowance (ESA), and grants for adaptations or equipment. Advisors can help with application forms and appeals. This service is free and confidential.
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Contact Details
Website
www.pspa.org.uk
Address
Unit A4, Lakeside, Aylesbury
Aylesbury
HP19 8DB
Social Links
Opening Hours
Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Saturday 09:00 - 17:00
Sunday 10:00 - 16:00
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