Health Charities

Genetic Alliance UK

CAN Mezzanine, 49-51 East Road, London N1 6AH

Overview

Genetic Alliance UK is a national patient-led charity based in London that works to support individuals and families affected by genetic disorders. Located at CAN Mezzanine on East Road in the heart of London, the organisation serves as a crucial resource and advocacy body for people living with inherited genetic conditions across the United Kingdom.

The organisation provides comprehensive information, support services, and representation for patients with genetic conditions. They work to improve access to genetic services, raise awareness about genetic health issues, and advocate for better care and support for affected individuals. Genetic Alliance UK also facilitates connections between different patient organisations and works to ensure that people with genetic conditions have a voice in healthcare policy and service development.

The charity offers various support services including information resources, networking opportunities, and guidance on living with genetic conditions. They engage with healthcare providers, researchers, and policymakers to promote understanding and improve outcomes for their communities. The organisation is an important point of contact for anyone seeking support, information, or advocacy related to genetic health conditions in the UK.

Frequently Asked Questions

Genetic Alliance UK in London provides support which may include information and advice about health conditions, emotional support and counselling, support groups and peer networks, practical help (benefits advice, transport, equipment), helplines and online resources, and community activities and events. Contact 020 7831 0883 to find out about specific services available in your area.
Most health charities including Genetic Alliance UK do not require a referral. You can contact them directly by calling 020 7831 0883 or visiting their website. Some specialist services may require a referral from a healthcare professional. Many charities also welcome family members, carers, and anyone affected by the health condition they support.
Most services provided by Genetic Alliance UK are free of charge. Health charities are funded through donations, grants, and fundraising. Some services such as specialist counselling may have a suggested donation. No one is turned away due to inability to pay. Contact 020 7831 0883 for details about any costs.
Yes, Genetic Alliance UK welcomes volunteers and fundraisers. Volunteering opportunities may include helping at events, providing peer support, administrative help, fundraising, and awareness campaigns. Contact 020 7831 0883 or visit the website to find out about current volunteering opportunities and how to get involved.
Yes, Genetic Alliance UK recognises the vital role of carers and may offer carer-specific support including information about the condition, emotional support and counselling, carer support groups, respite and practical help, and signposting to carer organisations such as Carers UK and Carers Trust.
Many health charities including Genetic Alliance UK fund vital medical research into causes, treatments, and potential cures for the conditions they support. Research funding comes from public donations and fundraising. You can contribute by donating, participating in fundraising events, or volunteering for research studies. Check the website for information about research Genetic Alliance UK is currently funding.
Many health charities including Genetic Alliance UK provide welfare rights advice, helping you understand benefits you may be entitled to such as Personal Independence Payment (PIP), Attendance Allowance, Employment and Support Allowance (ESA), and grants for adaptations or equipment. Advisors can help with application forms and appeals. This service is free and confidential.
Genetic Alliance UK may campaign and lobby for better services, research funding, and policy changes related to the health conditions they support. You can support campaigns by signing petitions, contacting your MP, sharing on social media, and participating in awareness days and events.
Genetic Alliance UK may offer specialist counselling for people affected by specific health conditions. This can complement NHS services and may have shorter waiting times. Counselling may be available face-to-face, by phone, or online. Sessions are confidential. Contact 020 7831 0883 to check availability and how to access counselling.
Genetic Alliance UK produces a range of information resources including fact sheets, booklets, guides, and online content about health conditions, treatments, and living well. These resources are written or reviewed by medical professionals and are designed to be accessible. Many are available free to download from the charity website or can be ordered by calling 020 7831 0883.
Yes, Genetic Alliance UK may run support groups where people affected by the same health condition can meet, share experiences, and support each other. Groups may meet in person in London or online. Peer support can reduce isolation and help you feel understood by others going through similar experiences. Contact 020 7831 0883 for details of groups near you.
Genetic Alliance UK may operate a helpline providing information, advice, and emotional support. Helplines are staffed by trained advisors who understand the condition and its impact. Some helplines are available 24/7, while others have set hours. Contact 020 7831 0883 or check the charity website for helpline details.
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Contact Details
Address
CAN Mezzanine, 49-51 East Road
London
N1 6AH
Social Links
Opening Hours
Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00
Saturday 09:00 - 17:00
Sunday 10:00 - 16:00
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